Dear Chronic Illness

exciting stuff has happened!

Sometime last year, I submitted a piece of work for a collaboration with Spoonie Survival Kits. I never expected my piece to be chosen as I expected there to be a lot of entries because the chronic illness community is such a large and diverse group of people, I was sure there would be someone better than myself.

BUT they chose mine! I’ve been over the moon and have tried to keep my trap shut about it until i knew for sure that things were rolling.

Pippa has done an excellent job of putting this amazing project together. It’s a collection of letters written by 16 young people all with chronic illness. The publisher Leesa Wallace has devoted much of her time and energy, along with her resources over at Wallace Publishing, turning this dream into reality.

dear chronic illness cover

Dear Chronic Illness is available in both eBook and paperback format.

All of the royalties from the book are to be donated to Spoonie Survival Kits.

The book contains letters addressed to long-term conditions ranging from POTS to endometriosis, from tumours to Severe M.E. The contributors include…

real and down-to-earth reflections about life with a chronic illness–  it’s lighthearted and often humorous, but it’s honest too.” -Pippa

Honestly, I couldn’t be more chuffed about this and I hope you join me in my excitement. Together, the 16 contributors along with Leesa & everyone helping to make this happen, have created an amazing thing that will shine a light on what it’s really like living with a chronic illness. I’m so proud of you all!

Click to buy your very own copy of Dear Chronic Illness!

xo

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I don’t make New Year’s Resolutions

  1. Read. More.
  2. Make every effort to be present – not only in my own life but in those I care about too.
  3. Take better care of myself. Including but not limited to- vitamins, skincare, exercise, self-care, 5 a day.
  4. Drink more water.
  5. Be grateful.
  6. Don’t stress the little things. Try not to worry about things that might never happen.

 

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If only I ran on batteries

 


My first look at the Sea is just magic. I stand gazing out, gulping in lungfuls of sea air, knowing it’s all doing me good. The air feels fresher, cleaner, at the coast. My hair whipping my face in the breeze and the wind taking my breath away.
I love the feel of sand between my toes. I love feeling the calm wash over me as I walk along the beach, the waves lapping at my feet and ankles.

 

It’s always quiet here, during the night and in the early morning light. I can hear the whine of the seagull crisp and clear. I’ve already noticed that people are friendlier when they are on their holidays. Full of smiles and happy greetings.

 

These days are to recharge- like a human battery. If only! It was a wonderful idea; a short

trip to the seaside that I knew would do me the world of good.

The only disappointment was the knowledge that all the stress, pain and worry would be waiting back at home. Like an estranged relative that only comes to visit for free food and wine and even then, rarely.

I have a MRI scan on Sunday, waiting for a date for a sigmoidoscopy, worry over results, planning another op with my gynae and surgeon. It’s all piled on top of me, like an avalanche, suffocating.
I have spent a lot of these 2 days outside, in the fresh air, with my husband and my dog. Balanced. Calm. I began to feel the benefits of sunshine and open space really quickly. I have been more relaxed (although not enough to have slept any better!) and have laughed more than I have in ages.


I have had a wonderfully chilled out time at the seaside. Huge thank you to hubs for being so patient with me over the last couple of months, he’s been awesome.

Just a quick note, also so so proud of my Big Lad, he was so well behaved at the coast and even made a few new friends! So good!

“But you’re ‘just a receptionist’ what do you know?”

16 gems from the life of a Receptionist…

  1. I eye-roll 3,496 times a day and Facepalm 1,569 times also. facepalm
  2. I make frequent use of the ‘hold’ button.
  3. I get excited over new stationery.                   LOL
  4. When you’re shouting down the phone at me, it doesn’t make me want to help you more.
  5. I’m an all-day grazer. My desk is covered in snacks. cream-cake.jpg
  6. I’m more embarrassed by your ‘embarrassing story’ than you are. smiley
  7. We’re not all 1 person. As much as I’d love to I can’t physically, emotionally, willingly- answer the phone, sit at the front desk, be the Dr’s secretary, filing and do admin.
  8. There are times when I release a string of profanity as soon as you hang up.
  9. I don’t have a magic wand, and no one is more gutted about that than I am. I can’t magic appointments out of thin air.    IMG_0209
  10. It’s exhausting being smiley and upbeat all day long. Most days I manage to leave my shit at the door. Most days…
  11. This is my job, my career. I am a professional receptionist. This isn’t a stop-gap while I’m home at uni.
  12. Saying the words: “Just-a-receptionist” is a sure-fire way of pissing me off and it will earn you either an eye-roll or “WTF” face.
  13. A sense of humour is VITAL in this job. bow
  14. It will be very tense prior to the annual CQC visit. IMG_0291
  15. Nothing makes me feel more like I’m exactly in the right place more than hearing a “Thank-you for you help” or seeing someone’s bad day ease just by providing a caring, compassionate response to a person’s bad time. IMG_0150
  16. TGIF                                              img_0218.jpg

my Fentanyl Muse

HAPPY EASTER KIDS!

I woke up on Wednesday morning with this poem in my head and when I put pen to paper the words just flew across the page. This came out of nowhere! Children’s poetry isn’t usually my thing and the only explanation I can come up with is; it must be drug-induced creativity.

I have recently been given Fentanyl patches as a form of pain relief for my severe and soul-crushing Endometriosis pain. This is the 2nd cycle using this patch and both times something freaky has happened. And it’s not even Friday!

After doing some online research, I found out that Fentanyl is 50-100x stronger than Morphine. So it’s no wonder I’m going bat-shit crazy! It’s been a struggle to hit the right keys, to form sentences and to even get out of bed, but I felt compelled to share this ray of sunshine with you! How could I not?

easter bunny poem

20s & Lost?

So you’ve graduated university with great grades and even greater prospects.

Five years later, you find out it’s not all as simple as your younger self thought.

If life’s not happening for you and you’re feeling a lil’ lost, you’re not alone.

You NEED this…

“All experiences add texture to being; sometimes a career path (and life) isn’t linear, but the wisdom you gain along the way is always invaluable.”

-Bianca Venerayan

Read the full article HERE at Girlboss.com –  Massive THANKS to Bianca at Girlboss, you have made me feel so much happier/calmer about my life in my 20’s!

 

breakfast club

 

life WILL happen, in time

Love‌ (n.‌) ‌A deep, tender, ineffable feeling of affection and solicitude toward a person, such as that arising from kinship, recognition of attractive qualities, or a sense of underlying oneness.

Some loves are true and fast; known as love at first sight. The sudden impact of this love can alter a person forever.

A mother’s love should be like a lioness. Tender but forever lasting. She is fiercely protective of her children and grandchildren. God help those who harm or wrong any of them.

 Young love is sweet and all consuming. Unable to stop thinking about each other, powerful but sensitive. A puppy love is endearing, like when a man’s eyes soften as he looks at the person he loves or the way a woman melts in her lover’s embrace.

 We all want a relationship that is full of passion, that brings out the best of both halves of the couple. But passion is like fire, it must be kindled and maintained or it becomes out of control; burning everything that it touches.

 A love can grow old along with you and as it ages, it changes into a love that is strong, familiar and evergreen. Two souls that share a lifetime of memories must surely know each other inside and out; steadfast, accepting of flaws and bracing against the harshness in life.

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